Late Effects Research & Studies

The following links include information that I have found in my own search for answers as a survivor of childhood cancer.

Note: I am no longer accepting link recommendations for this page. 


 

http://www.survivorshipguidelines.org/pdf/LTFUResourceGuide.pdf

American Cancer Society Children Diagnosed With Cancer: Late Effects of Cancer Treatment http://www.cancer.org/treatment/childrenandcancer/whenyourchildhascancer/children-diagnosed-with-cancer-late-effects-of-cancer-treatment

American Cancer Society – Cancer Facts and Statistics 2016  http://www.cancer.org/research/cancerfactsstatistics/index

Cancer.Net  Late Effects of Childhood Cancer  Approved by the Cancer.Net Editorial Board, 01/2016.  http://www.cancer.net/navigating-cancer-care/children/late-effects-childhood-cancer

Long Term Follow Up Clinics – Australia

The Sydney Children’s Hospital Network The Children’s Hospital at Westmead

KIDS Cancer Centre  Sydney Children’s Hospital Randwick

Long Term Follow Up Clinics – America

Ped-Onc Resource Center  List of clinics. http://www.ped-onc.org/treatment/surclinics.html

Post Traumatic Stress Disorder

Post-Traumatic Stress Disorder in Childhood Cancer Survivors: How Common Is It? Renee Twombly  http://jnci.oxfordjournals.org/content/93/4/262.long

Adult survivors of childhood cancers more likely to develop post-traumatic stress disorder.  Kim Irwin | May 03, 2010. http://newsroom.ucla.edu/releases/adult-survivors-of-childhood-cancers-157792