Late Effects Research & Studies

The following links include information that I have found in my own search for answers as a survivor of childhood cancer and also links that have been recommended to me. This Links page will be updated and added to on a regular basis. 


 

http://www.survivorshipguidelines.org/pdf/LTFUResourceGuide.pdf

American Cancer Society Children Diagnosed With Cancer: Late Effects of Cancer Treatment http://www.cancer.org/treatment/childrenandcancer/whenyourchildhascancer/children-diagnosed-with-cancer-late-effects-of-cancer-treatment

American Cancer Society – Cancer Facts and Statistics 2016  http://www.cancer.org/research/cancerfactsstatistics/index

Cancer.Net  Late Effects of Childhood Cancer  Approved by the Cancer.Net Editorial Board, 01/2016.  http://www.cancer.net/navigating-cancer-care/children/late-effects-childhood-cancer

Long Term Follow Up Clinics – Australia

The Sydney Children’s Hospital Network The Children’s Hospital at Westmead

KIDS Cancer Centre  Sydney Children’s Hospital Randwick

Long Term Follow Up Clinics – America

Ped-Onc Resource Center  List of clinics. http://www.ped-onc.org/treatment/surclinics.html

Post Traumatic Stress Disorder

Post-Traumatic Stress Disorder in Childhood Cancer Survivors: How Common Is It? Renee Twombly  http://jnci.oxfordjournals.org/content/93/4/262.long

Adult survivors of childhood cancers more likely to develop post-traumatic stress disorder.  Kim Irwin | May 03, 2010. http://newsroom.ucla.edu/releases/adult-survivors-of-childhood-cancers-157792 

Links Recommended By Readers

Cancer.Net Financial Resources 

National Comprehensive Cancer Network Patient and Caregiver Resources 

RealMeNot.com Guide to Looking Your Best While Overcoming Cancer 

Association of Cancer Online Resources www.acor.org 

Legal Resources for Cancer Patients 

Drug Information: recallguide.org Taxotere

comprehensive guide to helping loved ones cope with a cancer diagnosis